03/19 11:10We saw Doc A today - he hasn't seen us other than running into him in the office hallway since we finished chemotherapy. It's been almost a month since we had an office visit because we had the MRI in the middle, so all the nurses came in to see how big Alan had grown, how thick his hair was now and to hear about his daredevil stunts and head stands. His counts are good except he is a little anemic (probably due to his extremely limited diet), so we'll try some iron supplements. We've had problems with diarrhea on iron supplements before, so we'll start off slow. Otherwise, Doc A was very happy to hear that Alan was now eating chicken noodle soup (a whole week now!).
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We got referrals to an ENT and an ophthalmologist to check Alan's hearing and vision. His PT and SLP had requested them to confirm that they weren't a cause or contributing factor to his speech and gross motor skills issues, but Doc A concurred that it was a good idea, considering all the months of chemotherapy treatments he had.
We also got a copy of the MRI report. No surprises here, everything looks normal and the mass has once again showed a "continued mild progressive decrease in size" - essentially, the body is slowly reabsorbing the scar tissue.
Out of curiosity, we asked how long he would be keeping his port. Doc A said they generally stayed in for a year. I remember reading a parent on the PED ONC support list saying she didn't really feel treatment was over until her child's port was removed. I understand that sentiment, since it still doesn't quite feel real. But, it was nice to have another uneventful office visit to reinforce that everything was fine. We'll be back at the beginning of April.
Alan sits on the chair on his own for vitals like the big boy he is becoming
Kevin and Alan look out the window while we wait for the nurse
Wow, look at that head of hair! :)
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